I’m excited to announce that I will be guest starring on a television show!
The show is called Scream Queens and it’s on Fox.
The show airs Tuesday Nov 15th at 9/8c, and it will also be available on Hulu and Fox’s website.
And guess what else?!
I’m also excited that my character on the show has Marfan Syndrome 🙂
Basically the dream job.
This is a great opportunity to spread awareness and I will be doing my best to get on local TV news stations, as well as podcasts and web shows to talk about the show but more importantly, to talk about my heart condition called Marfan Syndrome. Awareness saves lives, and it’s important for everyone to know the signs. It’s not very often that Marfan Syndrome gets mentioned on television. And we’re typically seen as just patients on dramatic medical shows. Well on this show I’m not just a patient that is sick. I got to play a more layered and fun role. And it was awesome.
The cast, crew, creator and everyone involved were amazing. They took care of me on set. When I had back pain I was able to take a break, when my feet hurt they found different shoes, and when I told them about my heart condition, they listened and were excited to spread awareness as well. I want to extend a huge thank you to everyone involved, and I’m thankful that the writers, casting directors and Ryan Murphy made it a point to try to hire an actress who had Marfan Syndrome. It has been a dream come true.
I also want to note that this show is not a “PC” show and it does have violence, and perhaps isn’t a show that young children should watch. I recommend parents watch the episode first and then decide if you want to show your children the entire episode/series or just certain parts.
I love the show. It’s silly, over the top, edgy and really really funny. I don’t think television needs to reflect the ideal world, it’s purpose is to entertain us and to explore that which is not just good, but also evil and the struggles that mirror the real world.
I really really hope you watch the show and enjoy seeing someone with Marfan’s Syndrome on television. This was an amazing opportunity that has opened more doors and will allow me to continue to follow my dreams and inspire others with medical illnesses to follow their dreams as well.
I love you all and thank you all for the support! I will be posting again following the episode and I look forward to hearing your thoughts!
PS: Do you have a podcast, blog, web show, or work for a news organization and would like to learn more about Marfan Syndrome? Or hey, do you know Ellen Degeneres? 🙂 PLEASE REACH OUT! My email is: [email protected]
AND here are the signs of Marfan Syndrome:
- Long arms, legs and fingers
- Tall and thin body type
- Curved spine
- Chest sinks in or sticks out
- Flexible joints
- Flat feet
- Crowded teeth
- Stretch marks on the skin that are not related to weight gain or loss
Please go to https://www.marfan.org/ to learn more!
And don’t forget to join my mailing list!